Florida resident Oscar Hernandez is scrambling to ensure his 16-year-old terminally ill son, Llarell, will continue to receive medical care. Llarell is paralyzed and relies on three life support machines and specialized nursing care for 16 hours per day. Hernandez thought his son would receive Medicaid coverage for the rest of his life, until late March, when he got a call from his son’s Medicaid plan telling him his coverage would soon be terminated. “It’s been 16 years of taking care of a kid with a terminal disease.
After Losing Medicaid, Parents Of Florida’s Sickest Kids Are In Limbo
Caroline Catherman, South Florida Sun-Sentinel
Wed, 04/10/2024 - 6:19am
Topics: god so i joan alker georgetown university center the florida department mcmanus this dcf kaitlin maron supplemental security income social security seeking the florida health justice florida s q&a we re florida healthy kids children s health insurance program gov ron desantis well jan tampa ccatherman@orlandosentinel hernandez oscar hernandez llarell medicaid march i i it s easter sunday april i kissimmee i her a willie j allen jr /orlando sentinel florida a children families kidcare florida health justice project harmatz a in hernandez hernandez healthy kids healthy kids desantis legislature parents coverage state son set people complex home don paralyzed lose call month cases federal told haven letters ensure phone answers dropped states extended delayed late hours years asked plan advocates lost won process payment nurses months show outreach gap number government appeal loss fhjp added stumped
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