Florida resident Oscar Hernandez is scrambling to ensure his 16-year-old terminally ill son, Llarell, will continue to receive medical care. Llarell is paralyzed and relies on three life support machines and specialized nursing care for 16 hours per day. Hernandez thought his son would receive Medicaid coverage for the rest of his life, until late March, when he got a call from his son’s Medicaid plan telling him his coverage would soon be terminated. “It’s been 16 years of taking care of a kid with a terminal disease.

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